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Sometimes it really is a zebra! Listening to the patient voice without burdening the rare disease community

by Sarah | Feb 26, 2021 | Industry Insights

  We hear so much about the importance of “the patient voice”, but what does this really mean, and do we truly understand how best to incorporate this into drug development work? We reflect on these questions in relation to rare disease and look at what we can do...

Strategies for end-stage kidney disease (ESKD) behavioral change program and patient-reported outcome (PRO) measurement

by Lina | Dec 10, 2019 | COA Research

The challenge: To identify key barriers and facilitators related to successful self-management and clinical outcomes for patients with ESKD. We were also tasked with identifying and evaluating questionnaires available for the assessment of PROs in ESKD. What we did:...

Recommendations for maximizing retention to a data-gathering app for clinical trials

by Lina | Sep 23, 2019 | COA Research

The challenge: To provide recommendations to retain patients to an app to record patient recorded outcomes (PROs) over a two-year clinical trial period. Our client was concerned about potential high dropout rates. What we did: Elicited barriers and facilitators of...

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